Privacy Notice for Service Users

Everycare is committed to being transparent and open about why personal data is required and how this is managed.

This privacy notice explains your rights as a service user regarding the data opt-out policy, how data is collected, used, retained and disclosed in line with UK data protection laws. See Data Protection and Compliance with the General Data Protection Regulation (England, Scotland, Wales) Policy.

How and why personal information is collected?

As part of the services offered, we are required to process personal information or data about you.

“Processing” can mean collecting, recording, organising, storing, sharing or destroying data.

We must have a lawful basis for processing personal data and as a registered care provider, it is essential this is collected, including financial information, to enable us to provide ongoing quality care and support.

Information is contained in individual files, electronic and manual and other record systems which are subject to strict security and authorised access policies.

This data is held because we have a legal obligation to do so, usually under the Health and Social Care Act 2012 or Mental Capacity Act 2005.

We process “special category” data because:

it is necessary due to social security and social protection law, mostly in safeguarding situations and where it is necessary to protect your fundamental interests when you are physically or legally incapable of providing consent
it is needed for provision and management of social care services.
we are required to provide data to the Care Quality Commission (CQC), our regulator, as part of public interest obligations.

Special category data can be said to be personal data that needs more protection because it is sensitive.

Data may be processed with your consent. If we need to ask for your permission, you will be given a choice and ask that confirmation is provided.

We will also explain clearly to you what we need the data for and how you can withdraw your consent at any point.

What data do we have?

We may process the following types of data:

basic details and contact information, such as name, address, date of birth and next of kin, email address that you or your power of attorney have asked we hold
financial details, such as how you fund care or funding arrangements.

We also record the following data which is classified as “special category”:

health and social care data, which may include physical and mental health data
data may be recorded about your race, ethnic origin, sexual orientation or religion.

Data is retained in line with the Information Governance Alliance’s guidelines.

Where is data processed?

This is done face-to-face, via telephone, email, our website, by post, application forms and/or apps.

Data is collected from or shared with:

the service user or their legal representative(s)
third parties.

Third parties are organisations we might lawfully share data with, which include other parts of the health and care system such as local hospitals, service users GP or other health and care professionals, the pharmacy, social workers, clinical commissioning groups, the Local Authority and family or friends, with the service user’s permission.

There is a legal obligation to share information with some organisations, such as for safeguarding purposes, the CQC, police or other law enforcement agencies if requested by law or a court order.

Data is retained in line with the Information Governance Alliance’s guidelines

Your rights

You have the right to refuse/withdraw consent to information sharing at any time. The data kept about you is your data, kept confidential and used appropriately.

Rights regarding personal data:

you have the right to access personal data and can request a copy of all data held and will not normally be charged for this
incorrect information can be updated if any personal data is inaccurate or incomplete
you can request any personal data which is no longer necessary for the purpose we originally collected it for to be deleted
you can request that we restrict processing data if we no longer require your personal data for the purpose we originally collected it for, but you do not wish it to be deleted
if we have asked for your consent to process data, this can be withdrawn at any time
if we are processing your data as part of our legitimate role or to complete a task in the public interest, you have the right to object to that processing.

Identification may be required to support data requests to ensure personal data is not shared inappropriately and requests will be acted on as soon as possible, usually within one month.

What does this mean for me as a service user?

As a service user, information collected about you could be provided to other approved organisations, where there is a legal basis to do so, to help plan services, improve care provision and for research into developing new treatments and preventing illness.

Information is only used where allowed by law and never for insurance or marketing purposes without explicit consent. The care service will always seek written permission from you before sharing personal information with anyone else, for purposes other than direct care

However, if you do not want your personal date to be used for planning or research, you can stop this.

National Data Opt-Out

The national data opt-out gives everyone the choice to stop health and social care organisations sharing their “confidential patient information” with other organisations where it is used for reasons beyond individual treatment and care, such as research and planning purposes.

The term “confidential patient information” is used as the NHS do and where the opt-out is in force. In this context “confidential patient information” relates to information about service users’ health or social care that may identify them.

Adult Social Care providers, in line with your wishes and the national data opt-out, are required to apply national data opt-outs to use or disclose confidential patient information for purposes other than your direct care.

As a care service, we have an obligation to inform you about your right to choose regarding opting out of data sharing and are clear about how and when such a preference has been applied and a record of any decision regarding data opt-out kept.

Most care services do not use or share service users’ information beyond direct care and this care service does not share our service users’ information with any pharmaceutical, medical or other researchers and do not use sensitive information for purposes beyond your care and treatment.

We only share personal information on a “need to know” basis, observing strict protocols when doing so. Most of the data sharing is with other professionals and agencies involved with care and treatment.

The only exceptions to this general rule would be where we are required by law to provide information, eg to help with a criminal investigation

If you are happy with this use of personal information, you do not need to do anything but can change this decision at any time.

If you choose to opt out, your confidential patient information will still be used as necessary to support your individual care delivery.

As national data opt-outs are set or changed by individuals themselves, this must be done by you, the service user or someone legally able to act on your behalf. More details about the wider use of confidential personal information and to register your choice to opt out can be found at: https://digital.nhs.uk/services/national-data-opt-out or by phone: 0300 303 5678.

To opt out by post on behalf of a service user who lacks capacity, fill out and print off Manage Another Person’s Choice on Their Behalf, NHS Data Opt-Out by Post. It can only be done by an individual who holds an LPA.

All health and social care CQC-registered organisations in England must be compliant with the national data opt-out by 31st March 2022.

Information is available on request from the manager for service users, next of kin or appointed Lasting Power of Attorney (LPA).

Raising concerns

If you have concerns regarding how personal data is processed, The Data Protection Officer can be contacted via: https://everycare.co.uk/locations/

If you feel care services have not complied with requirements regarding your personal data rights, a complaint can be submitted to the Information Commissioner’s Office:

Information Commissioner’s Office Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF https://ico.org.uk/global/contact-us/